Godoy-Molina E
Hospital Regional Universitario, Spain
Title: Elaborating care plans for children with complex chronic conditions
Biography
Biography: Godoy-Molina E
Abstract
Background and objectives: Pediatric illness has undergone a dramatic epidemiological change with increased survival of children with complex chronic conditions (CCC). Care planning should be an essential part of their assistance, but to elaborate and update personalized care plans is not a simple task and could represent a significant challenge to clinicians. We aimed to develop a platform that facilitates the development of individualized care plans for children with CCC and make it accessible for all healthcare professionals.
Material and Methods: We conducted a scoping review about care planning and care plan development; established needs and objectives for the platform and designed it with the hospital’s informatics team.
Results: The platform was designed over a year and tested for six months. Its final version has the following sections: Background and relevant data (current state/diagnosis, social/psychological aspects, patient’s coordinator and contact details). Specialized care (problems/needs, goals, action plan, alarm signs, patient/family preferences, treatment, follow up). Technology dependency and daily care (filled in by the nursing team whit recommendation for daily care, use of the equipment and maintenance). Personalized care plan (collects all aspects included in the previous sections). Observations (allows multi and inter-professional communication). It can be accessed directly from the child’s medical history and all specialist, including primary care doctors and emergency physicians, can access and edit it.
Conclusions: We designed a platform that allows the development of personalized care plans in a simple and intuitively way. It preserves confidentiality, and all professional involved in the child’s follow-up can access the platform and collaborate in the development of the care plan. That will make it easier to provide the coordinated and integrated care these children need.